Caswell, Glenys, Seymour, Jane, Crosby, Vincent, Hussain, Asmah, Manderson, Cathann, Farnan, Sarah, Freer, Sarah, Freemantle, Alison, Littlewood, Fran and Wilcock, Andrew
(2017)
Lung cancer diagnosed following an emergency admission: exploring patient and carer perspectives on delay in seeking help.
Supportive Care in Cancer, 25
(7).
pp. 2259-2266.
ISSN 1433-7339
Full text not available from this repository.
Abstract
Purpose
Compared to others, patients diagnosed with lung cancer following an emergency, unplanned admission to hospital (DFEA) have more advanced disease and poorer prognosis. Little is known about DFEA patients’ beliefs about cancer and its symptoms or about their help-seeking behaviours prior to admission.
Methods
As part of a larger single-centre, prospective mixed-methods study conducted in one University hospital, we undertook qualitative interviews with patients DFEA and their carers to obtain their understanding of symptoms and experiences of trying to access healthcare services before admission to hospital. Interviews were recorded and transcribed. Framework analysis was employed.
Results
Thirteen patients and 10 carers plus 3 bereaved carers took part in interviews. Three patient/carer dyads were interviewed together. Participants spoke about their symptoms and why they did not seek help sooner. They described complex and nuanced experiences. Some (n = 12) had what they recalled as the wrong symptoms for lung cancer and attributed them either to a pre-existing condition or to ageing. In other cases (n = 9), patients or carers realised with hindsight that their symptoms were signs of lung cancer, but at the time had made other attributions to account for them. In some cases (n = 3), a sudden onset of symptoms was reported. Some GPs (n = 6) were also reported to have made incorrect attributions about cause.
Conclusion
Late diagnosis meant that patients DFEA needed palliative support sooner after diagnosis than patients not DFEA. Professionals and lay people interpret health and illness experiences differently.
| Item Type: |
Article
|
| RIS ID: |
https://nottingham-repository.worktribe.com/output/967690 |
| Additional Information: |
The final publication is available at Springer via http://dx.doi.org/10.1007/s00520-017-3633-8. |
| Keywords: |
Delay in help seeking; Diagnosed following emergency admission; Late diagnosis; Lay epidemiology; Lung cancer |
| Schools/Departments: |
University of Nottingham, UK > Faculty of Medicine and Health Sciences > School of Health Sciences
University of Nottingham, UK > Faculty of Medicine and Health Sciences > School of Medicine |
| Identification Number: |
10.1007/s00520-017-3633-8 |
| Depositing User: |
Eprints, Support
|
| Date Deposited: |
21 Feb 2017 12:10 |
| Last Modified: |
04 May 2020 19:56 |
| URI: |
https://eprints.nottingham.ac.uk/id/eprint/40682 |
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