Power up: patient and public involvement in developing a shared decision-making app for mental health

Edridge, Chloe and Edbrooke-Childs, Julian and Martin, Kate and Delane, Louise and Averill, Phoebe and Feltham, Amy and Rees, Jessica and Jeremy, Grace and Chapman, Louise and Craven, Michael P. and Wolpert, Miranda (2018) Power up: patient and public involvement in developing a shared decision-making app for mental health. Journal of Health Design, 3 (1). pp. 63-74. ISSN 2206-785X

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Abstract

Background

The importance of patient and public involvement (PPI) in designing interventions to support young people’s mental health is becoming a central tenet of the research process. Existing research has indicated that co-design with service users may help to engender multiple improvements in research projects, from design through to applications of study findings.

Aims

The aim of this study is to examine our experience of making the involvement of young people an ongoing part of the research process. We report on PPI in relation to a feasibility trial of the development of an app called Power Up, which is designed to support shared decision-making in mental health.

Method

Young people, carers, and clinicians were involved in each aspect of the project from governance, needs and environment analysis, to development and revisions of the Power Up smartphone app intended for use within child and adolescent mental health services. Involvement was achieved through ongoing contributions to steering groups, co-design workshops, and interviews. The project model was approached as a cyclical multidirectional process of ideas, PPI input, reflection, and alterations.

Conclusion

PPI was embedded into the project model from the outset, to be iterative and cyclical informing the development and direction of the digital tool at each stage. Involving service users resulted in the identification and implementation of multiple changes to the app, both conceptual and tangible. Several challenges associated with PPI were also encountered, warranting future research and discussion.

Item Type: Article
Keywords: PPI; app; MHealth, shared decision-making; co-design
Schools/Departments: University of Nottingham, UK > Faculty of Medicine and Health Sciences > School of Medicine > Division of Psychiatry and Applied Psychology
Identification Number: 10.21853/JHD.2018.40
Depositing User: Eprints, Support
Date Deposited: 28 Mar 2018 12:06
Last Modified: 28 Mar 2018 12:25
URI: http://eprints.nottingham.ac.uk/id/eprint/50684

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