Mapping the role of official bioethics advice in the governance of biotechnologies in the EU: The European Group on Ethics’ opinion on commercial cord blood banking

Mohr, Alison and Busby, Helen and Hervey, Tamara and Dingwall, Robert (2012) Mapping the role of official bioethics advice in the governance of biotechnologies in the EU: The European Group on Ethics’ opinion on commercial cord blood banking. Science and Public Policy, 39 (1). pp. 105-117. ISSN 0302-3427

[img] PDF - Requires a PDF viewer such as GSview, Xpdf or Adobe Acrobat Reader
Available under Licence Creative Commons Attribution Non-commercial.
Download (234kB)

Abstract

In the early 1990s, the EU's proposed bioeconomic agenda provoked ethical concerns among its citizenry. In response to the political impasse between economic and ethical imperatives, as well as the perceived lack of democratic legitimacy, the EU established an expert bioethics advisory body, known as the European Group on Ethics in Science and New Technologies (EGE). Situated at the boundary between law, bioethics and economic policy, the EGE plays an ambiguous role in the governance of biotechnologies in the EU. To elucidate the nature of its role and influence, this paper considers the EGE as an integral element of a broader web of governance spanning EU and Member State institutions. Using as a case study the emerging controversy surrounding commercial cord blood banking, we explore whether the EGE and its ethical opinions on this matter have contributed to the democratic legitimacy of the EU.

Item Type: Article
Schools/Departments: University of Nottingham UK Campus > Faculty of Social Sciences > Institute for Science and Society
Depositing User: Snowden, Ms Diane
Date Deposited: 15 Apr 2014 14:00
Last Modified: 15 Sep 2016 14:59
URI: http://eprints.nottingham.ac.uk/id/eprint/2517

Actions (Archive Staff Only)

Edit View Edit View